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Readers Respond: Coping With PCOS

Responses: 47

By , About.com Guide

Updated June 29, 2009

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WOW I am not alone

I just got back from the doctors office and when i was there i felt like a huge weight was lifted from me. I have been struggling with this like my triglycerides, weight gain, hair growth, skin tags and no periods. i would have never thought all of those things were linked into one. As i was telling my dr about my periods she looked at me and said "I know what is wrong with you!!!" She explained it and now i am going to go see a specialist. I am so glad that this was not all in my head. No one know what your going through unless you have it. I am only 30 and they had told me about 5 years ago that i was starting menapause. Now they think that I have had PCOS all along. This is all very new to me and still very confusing. I am just trying to figure it out. I am just thankful to have a name to what I feel!!
—Guest Shurrie

Oh My Gosh-This sucks!

I am 42. I was diagnosed at 27. I have had my facial hair lasored--best decision of my life even though I still shave. I have put on 80 pounds in 10 years. I am depressed and its gotten worse. I am scared that I won't be able to ever find joy because managing this disease overwhelms me. Is there anyone out there that can help! Is there anyway to fix this disease! Please write and tell us!
—Guest Michelle

confused

i have been diagnosed with POS after having a lot of cramping,which sometimes gets worse when i wee,bleeding and pain during sex and adult acne.ive never been overweight,have had 4 pregnancies without any problems and my periods are like clockwork.im having trouble understanding that ive been diagnosed with this.i do have the cysts on the ovaries and i think that was the main thing in diagnosing me.i dont seem to fit in anywhere when im looking at these websites and forums.im wondering if theres ANYONE with a story similar to mine??
—Guest natalie

I hear each of you

When i was first diagnoised with PCOS I had been going to my Family Dr and he told me I wanted to be pregnant so bad I was tricking my body. Well I finally saw another Dr who listened. I tried Clomid to get pregnant and finally I took Metformin and got pregnant. My son is now 3. Last year I was so disgusted with myself I joined the Gym in April. Since doing this I have ran a5k, 10k, and a1/2 marathon but I am having trouble losing weight. I have rapid mood swings and I could grow a better go-tee than my husband (very embarrsing). And my last drs visit I was told maybe I was meant to be PMS'Y. So as cruel as it sounds I am glad to know I am not the only one.
—Guest Jenn H

Depressed

I was diagnosed with PCOS at the age of 22. i had just started working and went in for a routine gynae check up. i also suffered with heavy periods, clotted alot during my period. Hair growth was starting to show. I tried three different pills and although my period was regulated, i gained a lot of weight. I went from a size ten to bordering a size 16. I also became severely emotional and depressed. I gave up the pill almost 18 months later and have battled to lose my weight. I have to have facials weekly to remove excess hair as it makes me so self conscience. Im depressed and everyone around me is having kids. Im due to get married in a years time but so afraid that i wont be able to fall pregnant. What depresses me more is people who fall pregnant and dont want kids.... lifes just so unfair. I do not feel like a woman
—Guest Guest

PCOS

I was unofficially diagnosed with PCOS after having a miscarriage last September. I cannot go and get the labwork done needed to get an official diagnosis therefore, I cant get the necessary treatment. I really want mor kids and it is frustrating and saddens me that I cannot get pregnant easily. There arent a whole lot of options out there for me and it sucks.
—Guest a j1239

Long Road

I was diagnosed with PCOS (formerly called Stein-Leventhal Syndrome) when I was 11 years old. I am now 41. I consider myself to be very informed. When I first started my period at almost 11 years old, it was very irregular and extremely heavy. This was when I was diagnosed. My mother took me to the Lahey Clinic in Massachussetts. I was told I could go on the pill to regulate my periods, but they thought I might be too young so they put me on Progesterone. I was told way back then that I could have a problem conceiving when I got older. I suffered with dark heavy hair on my face and body. I was made fun of as a young girl. I had electrolysis done on my face and other parts of my body. I have been taking the pill and spironolactone(aldactone) for a very long time now. The spironolactone has helped lighten the hair. I was lucky enough to have 2 beautiful children after going through fertility treatment. It took time, but it did work eventually. I also tried Metformin twice.
—SuzanneTA

dealing with PCOS

I have PCOS, since the age of 14. I never had periods. I was diagnosed after my first child and for some reason the symptoms went away after her birth. I felt the best I had felt in forever. I managed to lose all of my pregnancy weight and even some. I had regular periods and all. After my son (2yrs later) the symptoms came back in full force. I managed to lose the pregnancy weight but never got back down to after my first. About 1 year later, I stopped having periods. I was depressed and just irritable. I felt like I was constantly pmsing. I ate like a pig, I was bloated all the time and I was slowly starting to grow a beard! I HATE PCOS. Since then, they put me on all kinds of meds. Nothing worked and I felt horribly depressed. 2 years ago I got an operation where they drilled holes in my ovaries. the next day it felt as if the melancholic cloud had drifted and I felt myself again. Even though my period is back regularly, I still have trouble losing weight and have the hair.
—Guest Natalie

Trying to Deal..

It has been a nightmare. My first husband left me because i was unable to give him a child, I began packing on the pounds even though I was starving my self to keep the weight off, Then at 29, I was finally diganosed with PCOS, I began treatment when I lost the great job I had. Along with the job went the insurance. Now I am trying my best to maintain my weight, and deal with all the other issues that go with it, hair growth etc... My new husband does not understand and his job does not offer insurance. Have I mentioned he also wants a child. I would like to help and give him one. Now I am in a battle with not only the PCOS, but the constant depression and am on the verge of losing my 2nd husband. I don't know what to do anymore ....!!!!!!!
—Guest Rhonda

Coping

I am tired of explaining that I have PCOS. People have no idea that I watch what I eat, work out and nothing happens. I was just told that typically a woman with PCOS will lose a pound a month! It seems never ending. I have put on 20 pounds over the past 3 years, very easily and can not get it off. I am on Metformin but have not lost a pound. I try to stay positive but that can be very tiring.
—mmccab

um yeah

I am 21 and fighting with my pcos. Not only do I have pcos, I have fibromyalgia which is a muscle disease so I am in this never ending battle. Every symptom of this is caused by that.
—Guest brittanie

Why me??

I was diagnosed about 3 yrs ago and it has been a roller coaster ride; not only trying to get my symptoms under control but also my emotions. I feel out of control a lot of the time and go through periods of major depression not only due to the diagnosis but mainly hormonal. I feel like a terrible person and that I have no purpose as a women if I cannot reproduce. I am in a horrible place in my life and all my doctor ever says is "take birth control, you'll be fine. You'll have kids don't worry about it". Well that's not what I want to hear. I appreciate having people that can relate to vent to and hopefully get advise from. Thanx
—Guest D

Trying to deal

I have been dealing with cysts and my weight since I was 16, and now at 25, they finally tell me I have PCOS after a miscarriage. Now I'm taking metformin and hoping things start to go my way. Hoping my husband will understand all of this and the depression that I'm dealing with because of it. He doesn't have to feel all of this and I feel alone. It's nice to read what other people have to say and how other women are making it through this. Knowing that I wasn't losing my mind when I knew something was wrong but couldn't get my doctors on the same page. Ladies if you feel something is not right PUSH those doctors, all of them, if you have to. Just going on my first week on the med and starting to feel a little better. We will see.
—jennifermcbrid

Not "Just fat and lazy"

I was recently diagnosed with PCOS at 26, but I believe it began around 21. I was embarassed by my weight gain and my mother keep telling me I was just lazy. I spent months running miles and going hungry, desperate to lose weight before my wedding. My now husband sat up with me all night when I would emotionally break down. I had been a size 8 in high school and now I'm a 15. I didn't recognize the person in the mirror any more. I felt so ashamed, as though it were my own fault. When I finally asked my doctor for routine blood work, she found my testosterone was high. She sent me to an Endocrinologist and he immediately recognized my symptoms as PCOS. It was such a relief to know this wasn't my fault! I've started Metformin, I'm following the glycemix index, and I am already feeling better. I'd encourage any woman struggling with these symptoms to ask for blood work! Don't let anyone tell you it's your fault!
—Guest Lisa

Hard

Coping with PCOS is very hard especially here in Egypt where it isn't that popular. The hardest thing for me was the weight gain. I'm struggling with this disease for 5 years now and I'm only 21!!! It's really hard and I need the quick solution..
—Guest Rana

HARD TIME FOR ME

Hi. My name is Darlene. Coping with PCOS is very hard for me. I take this one day at a time. I have my good days and bad days. Even when I gained weight (going up,and staying up) was not okay for me. I was scared because I did not want to get diabetes, The way I found out was very hard. I had to start taking Metformin and some other pills for depression. I feel like all of this was so much for me because when I found out I was 23 and now I am 24. I never heard about PCOS. I never thought I would have to deal with this at my age.
—Darlene_S

Coping with PCOS

Coping with PCOS has been at times a trying one. I didn't find out that i had until i was trying to get pregnant. There was always talk that I may have it but no doctor never took the necessary steps to see for sure. Once I was diagnosed, the things my body was doing made sense. The facial hair, my neck was dark and it was very hard for me to lose weight. my periods had at one point stopped. Now I am on the Metformin and I have noticed my periods have become regular and I am even losing weight. However, I notice that when I don't take my medication like I should, my body rebels against me. My face breaks out and I start to put on weight. I wish I would have been treated for this condition when the doctors first thought I might have it.
—Guest Faith

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Coping With PCOS

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